The morning of November 5, 2015 (Thursday) will be a day that I will never forget and that changed our lives drastically. The kids and I had been sick with super yucky colds for a few weeks and we were so grateful that Tom hadn't been sick also. He came home Wednesday night from work, helped me get the kids in bed, get me settled on the couch (since that is where I had been sleeping all week to try and let him get some sleep), and he told me he was going to bed because he didn't feel very good. He had a pretty bad headache and felt like he was getting a fever. Both of us just chalked it up to it being his turn for the yuckies. I finally talked him into taking some Tylenol before bed (because he was starting with a fever and chills) and we all went to sleep. The next morning, I woke up super groggy from cold medicine and not sleeping all night. I realized that I didn't remember seeing Tom come in the kitchen for breakfast before he left for work. Tanner woke up about that time and came into me and wanted something. I told him to go ask his daddy. He came back a few minutes later and said, "Mom. I tried to talk to Daddy but he won't say anything to me!" My first thought was "Oh! The man cold!" and I wondered if he had called into work to let them know he wasn't coming that day. I tried to rouse him, but he wouldn't talk to me either. He would open his eyes and moan out in pain. He was BURNING UP! I tried several times to get him to wake up and take something for the fever, but he would not respond. As I was trying to wake up and figure out what was going on, I randomly remembered Tom telling me about the first time he had had meningitis and how his friends had found him and what he was acting like. It was exactly like what was going on now. I texted Kathy and told her what was going on and asked it sounded familiar and her response was "Get him to the hospital, NOW!"
I had called my mom and told her I couldn't get him to wake up or talk to me and she suggested getting an ice cube and rubbing it on his forehead to try and wake him (since flicking water in his face had not worked). As soon as the ice touched him, he smacked my hand, throwing the ice across the room and yelled "Stop it!" All I could do was laugh! But after that, I couldn't get him to react or talk again. I was starting to wake up and get really worried. My mom hung up and called Lynette Wilson, who is an EMT and she came up to help me. She had also called my Grandpa and a neighbor to come give Tom a blessing. Lynette showed up with 2 of her daughters and after trying to wake Tom, calmly looked at me and said, "I think it's time to call 911." I had no voice, due to my cold, so she called for me. Her sweet daughters took care of my kids for me. Tom received a blessing and the EMTs showed up. After not being able to wake or rouse him either, the put him in the ambulance and rushed him to the hospital. He was very sensitive to pain, and would not let them prick his finger to test his blood sugar levels! Haha!
When we got to the Emergency Room, they began to do some tests and to ask me questions. My mom was there with me and Tom's parents were also there. I told the doctors that Tom had had Meningitis 2 other times and this seemed very similar. They did a spinal tap to confirm that it was indeed a third bout of Meningitis. Tom was admitted to the 3rd floor, where he worked, and was put in a semi-private room. His manager hand picked the staff that would take care of Tom and he was really treated well. Thursday evening, Dr. Houghton (the doctor who admitted Tom) pulled me aside and told me that he had NEVER seen a case of Meningitis this bad. Tom's numbers were off the charts. He said that any extra prayers and blessings he could get, he needed, because he was fighting for his life. He told me that really Tom should be in the ICU, but he was holding stable. He would stay of 3rd floor IMC, but the ICU was on alert, incase anything changed with Tom's condition. Tom received another Priesthood blessing that night. Tom's dad offered to stay the night with him so that I could go home and get some sleep and take care of the kids. Tom was still out of it all night. He was agitated and in pain and kept trying to rip his tubes out. They finally had to restrain him to the bed so for his own safety. The next afternoon (friday) around 2:00 Tom finally started becoming aware of his surroundings and started to talk and respond to us. Dr. Houghton was astonished that he was doing as well as he was, considering the state he was in the night before. Tom remained in the hospital until Monday afternoon, when we were finally able to go home. He had been cleared by the Infectious Disease doctor and all his labs were looking good. He was sent home with a PIC line and antibiotics for several weeks.
Over the next several months, we spent a lot of time with doctor after doctor, trying to figure out what keeps causing him to get Meningitis and what we could do to prevent it from happening again. We were told several times that if he gets this again, he most likely will not survive it, so we were very very proactive about finding a solution. We met with Dr. Winters, a Neurosurgeon at McKay and he did several exams and CT scans trying to find answers. We (us and the doctors) determined that Tom's really bad car accident that he had on his 19th birthday (almost 18 years before this) that had caused so much facial trauma, must have caused a CSF (Cerebral Spinal Fluid) leak somewhere, which was causing the recurrent Meningitis. But for all of our efforts and scans, no leak could be found. Dr. Winters sent us to see Dr. Ramirez, an ENT. Tom and I both felt like it was a useless effort to go see him, but Oh My Goodness! Are we ever grateful that we did! He stayed after hours to see Tom and did another CT scan, sitting up this time. By the time we left his office that night, he had determined that because of the facial trauma from the crash, his Right Frontal Sinus had collapsed and was not draining properly. So, every time Tom would get sick or get a sinus infection, it had nowhere to go, but back into his brain. We were told that a Craniotomy was necessary to open him up and get to the sinus to fix it. We opted to have the surgery in Murray at the IMC hospital, so that meant another month or so of seeing new doctors. Dr. Maughan was our new Neurosurgeon, and he was really hesitant to do the surgery. Mostly because he really didn't know what to expect until they actually opened Tom's head up, and that is scary. He wanted to do the surgery with an ENT that he works with, so we then met Dr. Sharma, who as soon as he saw Tom's labs and scans, was in total agreement to proceed with the surgery. He even told us that if Tom had been his patient years ago, he would have done the surgery then and he never (or most likely) wouldn't have gotten Meningitis a 3rd time!
Tom had his surgery on April 29, 2016 (friday) and it went really well. Dr's Maughan and Sharma came to talk to my dad and I in the waiting room after the surgery and told us they were so glad they did the surgery. Once they got Tom opened up, they found that there was a bony structure (cause from the crash) with a sharp jagged piece of bone at the back, that had poked and ruptured the Dura (membrane) around the brain, and that the brain was actually sitting on the bone! AHHH! If he had gotten in another accident or even hit his head too hard, something really bad could have happened. When the Dura was repaired, they found that there actually was a very slow CSF leak. They patched the Dura and packed both Frontal Sinuses with fat and closed him back up. Tom was only in the ICU that day and then moved to the medical floor. He only had one dose of narcotics, and then only had Ibuprofen the rest of the time! His face swelled up quite a bit and bruised some, but he really did surprisingly well! We was sent home on Sunday morning and he is expected to be out of work for at least 6 weeks.
We are so gratefully for all of the tender mercies and all our guardian angels that have been with us over the last 6 months! We are so truly blessed to have been guided and directed in the ways we have!
Pre Surgery Prep!
Before
During
After
Right after Surgery
2 days after Surgery (the day he came home)